History and methodological basics of quality of life conceptions
https://doi.org/10.12737/artide_5d0ad216a56793.6456mi
Abstract
The science of researching the health-related quality of life has not only occupied a certain niche in modern medicine, but continues to evolve rapidly. The article presents a review of the literature data on the concepts of "quality of life” and "health-related quality of life”, the history of the issue and its methodological basics.
About the Author
N. L. PerelmanRussian Federation
Natal'ya L. Perelman - MD, PhD, Senior staff scientist of Laboratory of Prophylaxis of Nonspecific Lung Diseases.
22 Kalinina Str., Blagoveshchensk, 675000
References
1. Abrosimov V.N., Dmitriyeva N.V, Filimonova I.G., Shutov D.V The clinical significance of assessing the quality of life in adolescents with cardiovascular diseases. Vestniknovykh meditsinskikh tekhnologiy 2003; 10(1-2):59-61 (in Russian).
2. Barer G.M., Gurevich K.G., Smirnyagina V.V., Fabrikant E.G. Use of dental quality of life measurements. Stomatologiya dlya vsekh 2006; 2:4-7 (in Russian).
3. Guryleva M.E., Zhuravleva M.V, Aleyeva G.N. Criteria of quality of life in medicine and cardiology. Russkiy meditsinskiy zhurnal 2006; 14(10):761-763 (in Russian).
4. Lebedeva A.A. Theoretical approaches and methodological issues of life quality research in human sciences. Psikhologiya. Zhurnal Vysshey shkoly ekonomiki 2012; 9(2):3-19 (in Russian).
5. Nekrasova N.A., Nekrasov S.I., Sadikova O.G. Thematic philosophical dictionary: Tutorial. Moscow: MGU PS (MIIT); 2008 (in Russian).
6. Novik A.A., Ionova T.I. Guide to the study of the quality of life in medicine. Moscow: Olma Media Group; 2007 (in Russian).
7. Novik A.A., Ionova T.I., Kaynd P. The concept of the study of quality of life in medicine. St. Petersburg: Elbi; 1999 (in Russian).
8. Ozhegov S.I., Shvedova N.Y. Explanatory dictionary of the Russian language. Moscow: Azbukovnik; 1999 (in Russian).
9. Pushkar' D.Y., D'yakov V V, Bernikov A.N. Quality of life - a new paradigm of medicine. Farmateka 2005; 11:15-16 (in Russian).
10. Senkevich N.Yu., Belevskiy A.S. Quality of life -a subject of scientific research in pulmonology (According to the materials of the International Congress INTER-ASTMA'98 and the 8th National Congress on Respiratory Diseases). Terapevticheskiy arhiv 2000; 72(3):36-41 (in Russian).
11. Sechenov I.M. Physiology. Selected Works. Part 4. Moscow: Yurayt; 2017: 229 (in Russian).
12. Syrkin A.L., Pechorina E.A., Drinitsina S.I. Validation of methods for assessing the quality of life in patients with stable angina pectoris. Klinicheskaya meditsina 2001; 79(11):22-25 (in Russian).
13. Tkachenko T.B. Effect of dental status on the quality of life in elderly patients. Adv. Gerontol. 2008; 21(2):327-329 (in Russian).
14. Chuchalin A.G., Belevsky A.S., Smolenov I.V, Smirnov N.A., Alexeeva Y.G. Quality of life in patients with bronchial asthma in Russia: the results of a multicenter population study. Pul'monologiya 2003; 5:88-96 (in Russian).
15. Shevchenko Y.L. The concept of the study of the quality of life in the Russian health care. Vestnik Mezhnat-sional’nogo tsentra issledovaniya kachestva zhizni 2003; 1-2:3-21 (in Russian).
16. Aaronson N.K. Quality of life assessment in clinical trials: methodologic issues. Control. Clin. Trials 1989; 10 (4 Suppl.):195S-208S.
17. Anderson R.T., Aaronson N.K., Wilkin D. Critical review of the international assessments of health-related quality of life. Qual. Life Res. 1993; 2(6):369-395.
18. Bergner M., Bobbitt R.A, Carter W.B., Gilson B.S. The sickness impact profile: development and final revision of a health status measure. Med. Care 1981; 19(8):787-805.
19. Bowling A. Measuring disease: a review of disease-specific quality of life measurement scales. Buckingham: Open University Press; 1996.
20. Bowling A. Measuring health: a review of quality of life measurement scales. Philadelphia: Open University Press; 1997.
21. Bruil J., Fekkes M., Vogels T., Verrips G. TAAQOL Manual. Leiden: Leiden Center for Child Health and Pediatrics LUMC-TNO; 2004.
22. Bullinger M., Power M.J., Aaronson N.K., Cella D.F., Anderson R.T. Creating and evaluating cross-cultural instruments. In: Spilker B., editor. Quality of life and phar-macoeconomics in clinical trials. Philadelphia: Lippincott-Raven Publishers; 1996:659-669.
23. Calvert M., Blazeby J., Altman D.G., Revicki D.A., Moher D., Brundage M.D., CONSORT PRO Group. Reporting of patient-reported outcomes in randomized trials: the CONSORT PRO extension. JAMA 2013; 309(8):814-822. doi: 10.1001/jama.2013.879
24. Cella D. Measuring quality of life in palliative care. Semin. Oncol. 1995; 22(2 Suppl.3):73-81.
25. Databases on clinical outcome assessments (COAs). Available at: https://eprovide.mapi-trust.org/about/about-proqolid
26. Elkinton J.R. Medicine and the quality of life. Ann. Intern. Med. 1966; 64(3):711-714.
27. Frost M.N., Bonomi A.E., Cappelleri J.C., Shune-mann H.J., Moynichan T.J., Aaronson N.K. Applying qual-ity-of-life data formally and systematically into clinical practice. Mayo Clin. Proc. 2007; 82(10):1214-1228. doi: 10.4065/82.10.1214
28. George M.R. O'Dowd L.C., Martin I., Lindell K.O., Whitney F., Jones M., Ramondo T., Walsh L., Grissinger J., Hansen-Flaschen J., Panettieri R.A.Jr. A comprehensive educational program improves clinical outcome measures in inner-city patients with asthma. Arch. Intern. Med. 1999; 159(15):1710-1716.
29. Guideline for good clinical practice. ICN harmonised tripartite guideline. Geneva: WHO; 1996. Available at: https://www.ich.orgfileadmin/Public_Web_Site/ICH_Products/Guidelines/Efficacy/E6/E6_R1_Guideline.pdf
30. Ilic I., Milic I., Arandelovic M. Assessment quality of life: current approaches. Acta Medica Medianae 2010; 49(4):52-60.
31. Jones P.W., Quirk F.H., Baveystock C.M. The St. George's respiratory questionnaire. Resp. Med. 1991; 85(Suppl. B):25-31.
32. Juniper E.F., Buist A.S., Cox F.M., Feme P.J., King D.R. Validation of a standardized version of the Asthma Quality of Life Questionnaire. Chest 1999; 115(5): 12651270.
33. Juniper E.F., Guyatt G.H., Cox F.M., Ferrie P.J., King D.R. Development and validation of the Mini Asthma Quality of Life Questionnaire. Eur. Respir. J. 1999; 14(l):32-38.
34. Karnofsky D.A., Burchenal J.H. The clinical evaluation of chemotherapeutic agents in cancer. In: MacLeod C.M., editor. Evaluation of chemotherapeutic agents. New York: Columbia University Press; 1949: 191-205.
35. Kvrgic S., NiCiforovic-Surkovic O. Quality of life and its measurement in children. Med. Pregl. 2002; 55(1-2):57-59.
36. Landgraf J.E., Abetz L.N. Functional status and well-being of children representing three cultural groups: initial self-reports using chq-cf87. Psychol. Health 1997; 12(6):839-854. doi:10.1080/08870449708406744
37. Lawton M.P., Brody E.M. Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist 1969; 9(3 Pt.1):179-186. doi.org/10.1093/geront/9.3_Part_1.179
38. Manificat S., Dazord A., Langue J., Danjou G., Bauche P., Bovet F., Cubells J., Luchelli R., Tockert E., Conway K. Evaluation of the quality of life of infants and very young children: validation of a questionnaire. Multicenter European study. Arch. Pediatr. 2000; 7(6):605-614. doi: 10.1016/S0929-693X(00)80127-X
39. McDowel J. Measuring health. A guide to rating scales and questionnaires. New York: Oxford University Press; 2006.
40. McEwen J., McKenna S. Nottingham health profile. In: Spilker B., editor. Quality of life and pharmacoecon-omics in clinical trials. Philadelphia: Lippincott-Raven Publishers; 1996:281-286.
41. McSweeny A.J., Grant I., Heaton R.K., Adams K.M., Timms R.M. Life quality of patients with chronic obstructive pulmonary disease. Arch. Intern. Med. 1982; 142(3):473-478.
42. Mihaila V. Enachescu D., Davila C., Badulescu M. General population norms for Romania using the short form 36 health survey (SF-36). QL NewsLetter 2001; 26:17-18.
43. Murphy B., Herrman H., Hawthorne G., Pinzone T., Evert H. Australian WHOQoL instruments: User’s manual and interpretation guide. Melbourne: Australian WHOQoL Field Study Centre; 2000:1-48.
44. Oechslin E., Hoffmann A. Organizational and medical aspects of transition of juveniles with congenital heart defects to adult cardiology care. Ther. Umsch. 2001; 58(2): 111-118. doi: 10.1024/0040-5930.58.2.111
45. Pollard W.E., Bobbitt R.A., Bergner M., Martin D.P., Gilson B.S. The sickness impact profile: reliability of a health status measure. Med. Care 1976; 14(2):146-155.
46. Staquet M.J., editor. Quality of life assessments in clinical trials. Oxford, New York, Tokyo: Oxford University Press; 1998.
47. Schalock R.L. The concept of quality of life: what we know and do not know. J. Intellect. Disabil. Res. 2004; 48(Pt.3):203-216. doi: 10.1111/j.1365-2788.2003.00558.x
48. Schipper H., Clinch J.J., Olweny C.L. Quality of life studies: definitions and conceptual issues. In: Spilker B., editor. Quality of life and pharmacoeconomics in clinical trials. Philadelphia: Lippincott-Raven Publishers; 1996:11-23.
49. Sirgy M.J., Michalos A.C., Ferris A.L., Easterlin R.A., Patrick D., Pavot W. The quality of life (QoL) research movement: past, present and future. Social Indicators Research 2006; 76(3):343-466. doi: 10.1007/s11205-005-2877-8
50. Snyder C.F., Aaronson N.K., Choucair A.K., Elliott T.E., Greenhalgh J., Halyard M.Y., Hess R., Miller D.M., Reeve B.B., Santana M. Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations. Qual. Life Res. 2012; 21(8): 1305-1314. doi: 10.1007/s11136-011-0054-x
51. The World Health Organization Quality of Life (WHOQOL). Available at: https://www.who.int/heal-thinfo/survey/whoqol-qualityoflife/en/
52. What quality of life? The WHOQOL Group. World Health Organization Quality of Life Assessment. World Health Forum 1996; 17(4):354-356.
53. Varricchio C.G. Measurement issues in quality of life assessments. Oncol. Nurs. Forum 2006; 33(1 Suppl.):13-21. doi: 10.1188/06.ONF.S1.13-21
54. Ware J.E., Kosinski M., Keller S.D. SF-36. Physical and mental health summary scales: A user's manual. Boston (Mass): The Health Institute; New England Medical Center; 1994:23-28.
55. Ware J., Gandek B. Overview of the SF-36 health survey and the international quality of life assessment (IQOLA) project. J. Clin. Epidemiol. 1998; 51(11):903-912.
Review
For citations:
Perelman N.L. History and methodological basics of quality of life conceptions. Bulletin Physiology and Pathology of Respiration. 2019;(72):112-119. (In Russ.) https://doi.org/10.12737/artide_5d0ad216a56793.6456mi